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By Ruth Bartlett

Dementia has been greatly explored from the views of biomedicine and social psychology. This booklet broadens the controversy to contemplate the reports of fellows and girls with dementia from a socio-political point of view. It brings to the fore the idea that of social citizenship, exploring what it ability in the context of dementia and utilizing it to reassess the difficulty of rights, status(es), and participation. most significantly, the booklet bargains clean and useful insights into how a citizenship framework will be utilized in perform. will probably be of willing curiosity to wellbeing and fitness and social care pros, coverage makers, teachers, and researchers, and folks with dementia and family members carers will locate it revitalizing.

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Additional info for Broadening the Dementia Debate: Towards Social Citizenship (Ageing and the Lifecourse Series)

Example text

As Tsai (2009) notes, an individualised perspective is less relevant in Eastern culture where familial relationships and community tend to be prioritised. Thus, personhood may be an important Western concept but its relevance beyond less individualistic societies has not been established. The failure to adequately contextualise personhood has also led to concerns that a level of homogeneity in the dementia experience has been assumed that effectively mutes difference and limits the development of a textured understanding of the experiences (Downs, 2000; Hulko, 2002; Innes, 2002, 2009; Bond et al, 2004; O’Connor et al, 2007).

For example, Hulko (2009) found that people who could be classified as more privileged (based for example on socioeconomic status, gender and/or ‘race’) could be more devastated by the losses affiliated with the dementia than others who positioned it as ‘no big deal’ in the scheme of the bigger issues they contended with on a day-to-day basis. Others, for example Henderson and Traphagan (2005), describe how a person’s cultural background offers diverse ways of making meaning of the dementia – they found that in some aboriginal communities the individual may be accorded heightened status within the community as someone who was in closer communication with the spirits.

On this count, the notion of active citizenship offers a piece that has been occurring, but not necessarily discussed, in the field of dementia studies. In contrast, passive modes of citizenship are concerned with people getting what they are entitled to or have a right to expect as an equal citizen. For example, a person with very severe dementia who is dying is entitled to pain relief and other palliative care measures; receipt of these would be to experience a passive mode of citizenship, and would not constitute a loss of citizenship.

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